Autism Hope Alliance Summit: Hope with a Plan

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This week I had the privilege of speaking at the Autism Hope Alliance Summit along with 31 of the world’s most trusted physicians, researchers, and therapists.

Thousands of people tuned in from 169 countries, which makes this truly a global event!

The summit is just coming to a close tomorrow, but I thought I would share since you can still catch my talk for free until tomorrow morning titled “Autism and Auditory Hypersensitivity: Causes and Solutions”.

Now they’ve just released all 31 expert audio sessions to the public, through an All-Access Digital Pass that will give you permanent, lifetime access to every audio, along with transcripts for easy note taking and more.

Check out the Autism Hope Summit All-Access Digital Pass HERE

Autism Hope Alliance has provided over $300,000 in special foods, supplements, books, cleaners, toys and other crucial supplies to families across America. They have also provided over $140,000 in scholarships to families to attend a parent training program at the Autism Treatment Center of America and given free lectures to over 4,000 families.

When you grab this unique and special All-Access Digital Pass, your small donation will go to funding more of these wonderful programs. Plus you’ll equip and empower your family with the latest tools, tips, therapies and resources that can help you and your child on your autism journey.

See the Speakers & Topics Included

In full disclosure I’m on the Board of Directors for Autism Hope Alliance, and volunteer my time to this organization because I believe in the cause!

Sound Advice on VoiceAmerica Autism One Radio

It has been some time since I have shared here at The Brain Understanding Itself.  Definitely a reflection of  an extremely busy and exciting time in my life. Please forgive my sparse posts!

I wanted to share my interview with Teri Arranga and Kristin Selby Gonzales on the VoiceAmerica Talk Radio Network-Autism One Radio from earlier this week. We discuss autism spectrum disorders and the application of The Listening Program®, and how it can help children listen, learn, and connect.

Here is a link to the interview. Get the podcast in iTunes.

If you get a chance to listen I would love to have your questions and comments here.

Autism Symptom Remission NIH Patient Study Recruitment

The NIH is running a study that many of you will find of interest. Please read below and consider sharing with parents you know who have children on the autism spectrum who have had a reduction in  symptoms. I am very encouraged to see NIH investigate the growing reports of recovery and symptom remission in children diagnosed with asd’s.

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Patient Recruitment Announcement at NIH:

Identification of Characteristics Associated with Symptom Remission in Autism

We are recruiting children and adolescents (ages 7-17) who, since being diagnosed with autism, have made significant improvements such that they no longer meet criteria for a diagnosis of autism.  We are also recruiting children who continue to meet criteria for autism, as well as typically developing children.  Our goal is to better understand how children who make remarkable improvement may differ from children who continue to meet criteria for autism.

The study involves several inpatient and outpatient visits to Bethesda, MD, that may occur over a few days or several weeks, depending on what works best for the child and his or her parents.  The study involves an autism diagnostic evaluation as well as a thorough neuropsychological and medical evaluation.  A summary of all clinically relevant study findings including results of the neuropsychological exam will be provided. There is no cost to participate and children are compensated for their time.  Travel assistance and lodging may be provided.

For further information please call the study coordinator at 301-435-7962 (TTY 866-411-1010) or email autismoutcomestudy@mail.nih.gov

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This study announcement is from the NIH Patient Recruitment web site:

Visit the NIH Patient Recruitment home page at http://patientinfo.nimh.nih.gov/

Webinar-The Listening Program and Autism Spectrum Disorders

If you have an interest in learning more about The Listening Program® method of music listening therapy please join me for a live webinar this Sunday organized by the Akhil Autism Foundation.

The Listening Program® (TLP) is a music listening therapy that provides engaging brain stimulation to improve performance in school, work and life. This introductory webinar is free and will provide an overview of  the auditory system, auditory processing, and how music listening therapy can help improve the life of a child on the autism spectrum.

Date: Sunday, Dec. 20, 2009
Times: USA  11:00 AM – 12:00 PM EST (Eastern Standard Time)
9:00 AM – 10:00 AM MST (Mountain Standard Time)
India    9:30 PM – 10:30 PM IST (Indian Standard Time)

TO REGISTER: https://www2.gotomeeting.com/register/790568674

After registering you will receive a confirmation email containing information about the Webinar.

SYSTEM REQUIREMENTS
PC
Required: Windows® 2000, XP Home, XP Pro, 2003 Server, Vista

Mac
Required: Mac OS® X 10.4 (Tiger®) or newer

New Autism Study Demonstrates The Listening Program Improves Auditory Skills

A new study in the UK demonstrates The Listening Program® developed by Advanced Brain Technologies improves auditory skills in children with autism.

“A Study to Establish Whether the Use of The Listening Program is Effective in Improving Auditory Skills for Children with Autism” was presented by Gwyneth Jeyes  at the Developmental Practitioners Association Conference “Children Matter” In Nottinghamshire, United Kingdom back in September.

Twelve children on the autism spectrum ranging in age from 5 yrs. 8 mo. to 12 yrs. 4 mo. in Northern Ireland participated in the study. Results from the SCAN-C test for Auditory Processing Disorders demonstrated improvements in auditory skills in all children who completed The Listening Program® method of music listening therapy.

The Listening Program® has been widely used for more than a decade to reduce auditory hypersensitivites, improve auditory discrimination, increase communication skills, and social engagement for children on the autism spectrum. The outcomes of this research are encouraging, consistent with other studies,  and warrant the design of  a larger, controlled study to explore the feasibility of more widespread use of this music listening therapy method to improve auditory processing skills for children with autism spectrum disorders.

To read the full study

Autism Awareness Month-Best Possible Life

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It’s Autism Awareness Month. This is a time the world is bringing autism spectrum disorders (ASD) to light, so they can be better understood and appreciated.

The autism community is unfortunately divided. Lines are drawn in the sand, Accept/Cure, and on. This post will not delve into the divide. I am not a parent of a child on the spectrum and  have not walked in their shoes. 

However, I am someone who cares deeply for families touched by autism as my family has for generations. What I think important is that we recognize each individual labeled as having an autism spectrum disorder as the unique and special person they are. For they like everyone I want nothing more than the BEST possible life they can have.  And, for those that love them to appreciate they have infinite potential. We should do all that we can to understand the cause(s), develop reliable early indentification, and provide sufficient opportunities for growth, learning, and personal development.

My company is the developer of The Listening Program® method of music-based auditory stimulation. It’s used by parents, educators, and healthcare professionals with hundreds if not thousands of people diagnosed with ASD’s on a daily basis.  I am vested in this discussion.  We work with people across the globe challenged with how to provide the best opportunities for families touched by these disorders.  Ultimately we all want the same thing, a happy, fulfilling life for those we serve. That’s where my awareness centers, today and everyday. 

Here are a few links I hope you find helpful:

AutismSpot www.autismspot.com

Autism Hangout www.autismhangout.com

Autism Research Institute www.autism.com

Autism Treatment Center of America www.autismtreatmentcenter.org  

Autism-Asperger’s Digest Magazine www.aspergersdigest.com

DIR®/Floortime www.icdl.com

Dr.Charles Shidlofsky www.dr-s.net 

Enzymedica www.enzymedica.com

National Association for Child Development www.nacd.org 

SI Focus Magazine www.sifocus.com

The Listening Program® www.thelisteningprogram.com

Autism: What the Experts Know http://tinyurl.com/dd583n (Disclaimer, while a contributor to this resource I in no way see myself as an expert on autism).

Research Poster: Exploring Porges’ Theory of Social Engagement

Exploring Porges’ Theory of Social Engagement: Using a music stimulation program for an 8 year old boy with autism

This research poster was presented November 16-19 at the Mozart & Science 2008 – 2nd International Congress for the Interdisciplinary Research on the Effects and the Experience of Music at the Palais Niedrosterreich in Vienna, Austria.

This case study compares the elements, protocols, and reported outcomes of an enhanced music stimulation program and the listening project created by Porges to test his theory of social engagement on autistic individuals who are known to have difficulties in this area.

Read more http://www.thelisteningprogram.com/PDF/News/ABT_Porges.pdf

To learn more about The Listening Program® method of music-based auditory stimulation used in this research please visit www.thelisteningprogram.com.